Communication Issues in Patient and Provider Discussions of Immunotherapy
0 Years and older, Male and Female
WINSHIP3293-16 (primary)
NCI-2020-00828
IRB00091198
Summary
This trials studies communication issues in patient and provider discussions about immunotherapy. The goal of this study is to describe where patients have heard about immunotherapy, what they understand about it, how physicians and other healthcare workers describe immunotherapy, and how educational videos may support patient knowledge about immunotherapy.
Objectives
PRIMARY OBJECTIVES:
I. To identify misestimations about the risks and benefits of immunotherapy resulting from media hype or other sources and assess if these misestimations persist post-provider conversation about immunotherapy.
II. To qualitatively describe patient reported misunderstandings and to assess patient understanding of technical terms and metaphors used in the immunotherapy conversation.
III. To identify provider and patient preferences for information to be communicated about immunotherapy.
IV. Develop videos that describe immunotherapy and test their efficacy in improving understanding using pre and post methodology.
OUTLINE:
Patients and their providers undergo observation during a conversation about immunotherapy. They then participate in an interview over 20 minutes. Patients may also watch educational videos about immunotherapy.
Eligibility
- AIMS 1-3: All patients and providers who may have a discussion about immunotherapy at the Winship Cancer Institute
- AIM 4: Any cancer patient
Treatment Sites in Georgia
**Clinical trials are research studies that involve people. These studies test new ways to prevent, detect, diagnose, or treat diseases. People who take part in cancer clinical trials have an opportunity to contribute to scientists’ knowledge about cancer and to help in the development of improved cancer treatments. They also receive state-of-the-art care from cancer experts...
Click here to learn more about clinical trials.