Predicting Childhood Cancer Survivors' Transition Readiness and Transfer Outcomes, SURV Transfer Outcomes Study
18 - 25 Years, Male and Female
CHOA4312-18 (primary)
NCI-2020-07495
Summary
This study investigates childhood cancer survivors' knowledge and readiness to transfer to adult survivor care. Survivors of childhood cancer need to attend follow-up appointments to stay healthy. As they get older, survivors transfer to adult doctors for their survivor follow-up appointments. Information gained from this study may be used by researchers to help future survivors prepare to transition to adult doctors.
Objectives
PRIMARY OBJECTIVES:
I. Evaluate social-ecological factors among adolescents and young adult (AYA) childhood cancer survivors participating in pediatric survivor care to determine factors associated with decreased transition readiness (i.e., risk factors) and increased transition readiness (i.e., resilience factors), as well as characterize patterns of co-occurring risk factors associated with transition readiness.
II. Evaluate social-ecological factors among AYA childhood cancer survivors following transfer to identify factors associated non-adherence (i.e., risk factors) and adherence (i.e., resilience factors) to adult survivor care, as well as characterize patterns of co-occurring risk factors associated with non-adherence to adult survivor care.
III. Develop and assess quality of electronic multimedia materials to educate AYA survivors about lifelong survivor care through qualitative interviews with AYAs.
IV. Evaluate the impact of electronic educational materials on AYA survivors’ knowledge about late effects, perceived benefits, self-efficacy, and intentions to engage in lifelong survivor care.
OUTLINE:
Patients complete an online survey over 15-30 minutes about health, emotional well-being, and transferring to adult doctors. Patients may also participate in an interview over 30 minutes -1 hour. Patients' medical records are also reviewed.
Eligibility
- Patients must be 18-25 years of age
- Diagnosed with cancer at =< 18 years of age, >= 2 years since the last cancer treatment
- Seen at least once in the Aflac CSP in the past 2 years (Aims 1, 3, & 4) or transitioned out of the Aflac CSP to adult survivor care since 2013 (Aims 2, 3, & 4)
**Clinical trials are research studies that involve people. These studies test new ways to prevent, detect, diagnose, or treat diseases. People who take part in cancer clinical trials have an opportunity to contribute to scientists’ knowledge about cancer and to help in the development of improved cancer treatments. They also receive state-of-the-art care from cancer experts...
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